Maddie was born with a smooth brain, unlike most brains that have ridges. This condition, known as lissencephaly, impacts every area of her life. Maddie can experience over 100 seizures a day, but she is still able to find joy by playing with her dolls and connecting with family and friends. | Special Books by Special Kids
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What Is The Life Expectancy For A Child With Lissencephaly? - Ear Nose Throat Expert
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This is the kind of love that changes the way you live your life! Today marks 5 years since we got Elijah's terminal Lissencephaly diagnosis! As the kids sat in the waiting room I held this tiny boy the Dr delivered the news. I loaded 6 kids in my van and drove 13 hours to the ocean! There they found out Elijah would only be ours for a short time and the trajectory of my entire life changed in a second! We decided to give him the best God-filled life we can! We want to show him everything he sho
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Today is Lissencephaly Awareness Day Lissencephaly is a rare brain condition which literally translates to 'smooth brain'. The implications of having a smooth brain are complex and significant. It is reported that many individuals with Lissencephaly remain at a 3-5 month developmental level, that seizures are 'hard to control', they will have a limited life expectancy and aspiration and respiratory disease are the most common causes of illness and/or death. It is estimated that Lissencephaly aff
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Lissencephaly is a rare brain malformation characterized by the absence of normal folds | Lukas Caldwell
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Lissencephaly Treatment
Lissencephaly Treatment
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It explains the injury, not the potential. #Lissencephaly #SmoothBrain #RareCondition #BrainInjury #DisabilityEducation #Neuroplasticity #MoreThanADiagnosis #DisabledChildren #ParentPerspective #BeyondDiagnosis | Acorn Updates
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